Sometime last year, I stumbled upon a great song about ME/CFS called Everybody Knows About Me by the band Cinder Bridge. It was written by Susan Wenger (the band's singer and keyboardist) who has a friend with the disease.
I shared the song on the Phoenix Rising Forums, a community message board for those suffering with this illness. One of the members (Teejkay, along with her husband) then came up with the idea to make a video using the song. With Cinder Bridge's permission, they requested photos of people from the forums who have long suffered from ME/CFS, set the photos to fit the music and created the below video for it.
I wanted to share it here because they did such a great job, and because I was so honored to participate. Please share widely in order to help increase awareness. Thanks for watching!
Wow. This is very powerful. Tears are on my face as I identify with what is being said here. I plan to send it on to my family members....
ReplyDeleteThank you for ALL you do Laurel, from your corner of the world, to bring awareness to others with ME/CFS. What a blessing you are to so many!
Thanks so much for this, Laurel. I'm going to send it to others. And, I voted in your poll (for me, the answer is "incapacitating fatigue").
ReplyDeleteThanks for posting this Laurel. I enjoyed it and found it very moving.
ReplyDeleteI hope you're doing ok... x
Oh wow. I'm in tears. I posted a link to this on Facebook!
ReplyDeleteI loved it, Laurel. Had to hit pause to dry my eyes. I wish they had photos of the young people as well, though. I voted, not for myself, but for Jessie.
ReplyDeleteThanks for posting this, Laurel. I also felt honored to participate.
ReplyDeleteAbout half an hour before I watched this I drew, in my sketchbook, a picture of myself with a ton weight on each shoulder. How amazing is that? Really spoke to me, thanks.
ReplyDeletea very poignant song and well documented video. Many thanks for posting Laurel. I do hope you are coming out of your last crash.
ReplyDeleteThis is FANTASTIC. I'm also going to send it around.
ReplyDeleteI hope you are feeling better Laurel!
Wow! That was awesome! The song says it so well and I loved the photos putting a face to this invisible illness! Thanks for sharing it.
ReplyDeleteI think I will highlight it on my youtube channel!
Thanks Laurel for sharing!
I was on my way to crying all day land watching this!! Very good & very emotional. Thanks for sharing. I have put ot on my new ME blog x x
ReplyDeleteLaurel--Moving, goosebumps on the arms, tears lined in the ducts...video. It powerful, sad, affirming, comforting, did I say sad?... to see all of "us"...living this...looking out our windows...blanket, pillows, tired eyes...STEADFAST spirits.
ReplyDeleteThank you for sharing this. It was a beautiful experience. Kerry (twenty years).
There are some really good lyrics in this song. I knew it was being made but was to shy to submit my picture :) Thanks for posting the finished product.
ReplyDeleteI like the new look of your blog. The ME/CFS fact page is really good. When I get around to it I want to link to it on my blog. Thanks so much for your comment there.
Alison
Thank You Laurel...I KNOW also about the HARD days in between..after my 23 years so far..
ReplyDeleteI have your bog on my blogroll ;)
http://standup2me.blogspot.com
Please BE ♥ AWAP *Gentle Hugs*